ncan support groups – wisconsin chapter
Tom is the leader of the Wisconsin Neuroendocrine Cancer Connection group. Tom and his wife Lynn live in Neenah, WI, just south or Green Bay. Tom was ‘introduced’ to neuroendocrine cancer in April 2015 when his wife Lynn was scanned for breast discomfort (which turned out to be nothing) and a spot on the liver was noticed and biopsied. She had been reporting symptoms for 5+ years – all diagnosed as menopause, IBS, etc. Very typical. Her site source is her ileum (small bowel) which had metastasized to her liver. She’s had two debulking surgeries resulting in ‘no evidence of disease’ for a short period before developing into 50 liver tumors. Several years later she was also diagnosed with carcinoid heart disease as a result of the serotonin from the tumors.
The Wisconsin Neuroendocrine Cancer Connection group is for NETs patients living in Wisconsin. We have monthly meetings in Appleton and occasional meetings in Kenosha. We are looking for someone to set up meetings in the Milwaukee and Madison areas. If you are interested, please contact me. Our group can be helpful to discuss all aspects of NETs including national specialists and resources within the State of Wisconsin which our members are familiar with.
To join us, please add your name to our facebook page – the Wisconsin Neuroendocrine Cancer Connection Group.
Mr. Tom Wilson
WISCONSIN SUPPORT GROUP LEADER
WHERE WE MEET
The second Saturday of the month at 10 AM at St. Mary’s Parish at 312 S. State Street in Appleton, WI.
Alternate locations we occasionally meet:
Wauwatosa, WI (Milwaukee area)
WHEN WE MEET
This NCAN chapter support group meets approximately every 60 days.
The Wisconsin Neuroendocrine Cancer Connection Group meets monthly in Appleton, WI on the second Saturday of the month at 10 AM at St. Mary’s Parish at 312 S. State Street in Appleton. Enter at the corner of 8th and State Street and follow the signs to the lower level (there is an elevator).
There are also meetings in Kenosha from time to time. Please monitor the facebook page or contact.
We are looking for someone to set up meetings in the Milwaukee and Madison areas. If you are interested, please contact me.
ABOUT OUR GROUP
NCAN Chapter Support Group meetings are built on the concept of patients helping patients.
This group has grown from 7 individuals in 2017 to nearly 120 as of July 2023. Did you know that there are likely over 3,000 individuals with NETs living in the State of Wisconsin!
Our meetings are about getting to know others who understand exactly what you’re going through, and about getting you the most up-to-date information on NET testing, treatment options and local medical resources within the State.
Up until 2023, there were no NET specialists in the State of Wisconsin – that was until Dr. Phan joined Froedert. There are however excellent clinics and doctors who currently work with specialists from other clinics. We will also share lifestyle tips, dealing with insurance issues and denials, preparing for and recovering from surgery, etc.
We hope you decide to join us at an upcoming meeting…we look so forward to meeting you!