ncan support groups – ne pennsylvania chapter
My name is Lori. I am originally from Staten Island, NY and have lived in Northeast PA since the end of 2000. I am a mother of 6 children and 4 grandchildren.
I was diagnosed with Neuroendocrine Cancer a few days before Christmas of 2009 of my terminal ileum. I had my colon resection in January 2010. I live in a rural area of PA and at that time it was very difficult to find a NET specialist let alone someone who knew anything about this rare cancer. Since my journey has started, I have been on a roller coaster of back and forth of “NED.” I had a tumor removed April 2021 in my duodenum and am in current treatment.
Through my years I have learned that you need to advocate for yourself! If you are not comfortable with what is said even from a doctor, ask questions and even go for a 2nd or 3rd option. I have also realized that we are our own unique community. There needs to be more awareness out there, not just among individuals but also the medical field.
I think it’s very important to have a support team and someone to turn to. Someone to vent to, ask questions, not just the patient but also the caregivers, the family. I connected with Maryann and NCAN years ago and have found her helpful in many ways. She has connected me to many resources. I am so excited and happy to be bringing a piece of that support to the Northeast part of PA, especially since we are very rural.
Ms. Lori DeVoe
NE PENNSYLVANIA SUPPORT GROUP LEADER
WHERE WE MEET
To be determined once our group gets established and we find out where everyone will be coming from.
WHEN WE MEET
This NCAN chapter support group meets on a (TBD) basis.
Next meeting: TBD. The exact dates and times are TBD.
ABOUT OUR GROUP
NCAN Chapter Support Group meetings are built on the concept of patients helping patients.
Our meetings are all about getting to know people who understand exactly what you’re going through, and about getting you the most up-to-date information on NET testing, treatment options, and lifestyle tips.
We are just getting started and are looking for new members. We are looking forward to doing great things and hope you will consider joining us. We look forward to meeting you!