ncan support groups – new mexico chapter
I was diagnosed in January of 2012 with a midgut (ileum) NET primary tumor and had small bowel resection and tumor removal. In February 2013 due to metastasis to liver, I had a right hemicolectomy (right liver lobe removed), and had my appendix and gall bladder removed.
I began a small NETS support group (only 2 people) in May of 2014 and now have 30 people on our email list. I was NED (No Evidence of Disease) for about 3 years but then saw some new growth. I started on monthly lanreotide shots in May 2016. In June of 2018, after a Gallium 68 Dotatate Scan. I had some bone metastasis and liver tumors showing up. I started on zometa IV monthly for bone mets and am now on an every 6 months Zometa IV.
I had abdominal surgery at Baylor University Hospital by Dr. Yi Zarn Wang in November 2018 when over 50 NETS tumors were removed. I am currently seeing NETS specialist, Dr. Heloise Soares (studied under Dr. Jonathan Strosberg at Moffitt Cancer Center in Tampa, FL) at UNM Cancer Center in Albuquerque, NM.
It is my desire to try to provide current NETS info to our Albuquerque support group and to let newly diagnosed patients know that there are a lot of options available bringing great hope.
Mr. Terry Nelson
NEW MEXICO SUPPORT GROUP LEADER
WHERE WE MEET
We currently meet upstairs in Room #7 at the:
North Domingo Baca Multi-Generational Center
7521 Carmel Ave. NE, Albuquerque, NM 87113
It is just north of Paseo Del Norte and at the NW corner of Wyoming and Carmel Ave (entrance off Carmel).
WHEN WE MEET
This NCAN chapter support group aims to meet on a quarterly basis.
Next quarterly meeting – August 21, 2019, 6:30 – 8PM. It is just north of Paseo Del Norte and at the NW corner of Wyoming and Carmel Ave (entrance off Carmel). Will be discussing GA 68 scan and PRRT protocol.
Join our group and receive email updates.
ABOUT OUR GROUP
NCAN Chapter Support Group meetings are built on the concept of patients helping patients.
We are all about getting to know people who understand exactly what you’re going through. Via our meetings, group emails and one on one phone calls we try to keep each other updated. (testing, diet, surgery, chemo, conferences, treatments, etc.) In addition, we provide support, direction and hope as we deal with this cancer together.
We hope you decide to JOIN us…we look so forward to meeting you!