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Dave is a long term Carcinoid survivor of 21 years since his DX. He states ” If there is an “average” patient experience with Carcinoid, I’d be near that average”. He has participated in several Clinic Trials including the Stable Patient arm of the Ga-68 trial through Drs. O’Doriso at the University of Iowa. He has attended most of the National conferences over the last 15 years. Dave started the Michigan Carcinoid Group about 15 years ago with the theme of “Sharing information, Caring for Each other”. Dave is retired for the second time and hopes it “sticks” this time. He enjoys travel with Lynn, his wife of 40+ years, and working at his daughter’s equestrian center in Lowell and migrating between Grand Rapids and Nashville, TN.

Julie was diagnosed with NETS in 2019 at the age of 50 after an emergency bowel resection.  (She suffered for 12 years with misdiagnosed symptoms.)  She had an additional tumor debulking surgery in 2020 after consulting with specialists at the University of Iowa.  She started monthly Sandostatin shots (butt-darts) shortly afterwards and has been relatively stable since then.  She and her husband have recently retired; they enjoy MSU tailgates, running, traveling, and spending time with their parents and 2 grown children.

“The Neuroendocrine Cancer Awareness Network (NCAN) is one of the groups that helped me to learn more about my disease – I am grateful to them for the educational resources and emotional support.  I have met some truly wonderful people through this organization, and I hope to help them spread awareness and provide support to those with this crazy cancer.”